Neurotrauma is cruel. It results in devasting injury and death, can occur at any time and spares no one. More importantly, the size of the problem is growing, and virtually everyone is touched by someone who has experienced neurotrauma. As a community of medical caretakers, we are tired of not being able to fight back effectively. For this reason, we seek to envigorate our community to plan for a new era of research to tackle this problem and reduce the burden that neurotrauma places on our patients, family, friends, and society.
Following this recognition, the EANS Foundation has initiated the development of European Neurotrauma (E-NEURO) Registry to advance TBI research and care across Europe. It is an international electronic database designed to enhance research, improve patient care, and support the training of neurosurgeons.
Scope of the Problem
Personal and Socioeconomic costs are very high for Traumatic Brain Injury (TBI) & Spinal Cord Injury (SCI) (millions of Euros per patient over life).
Moderate and Severe TBI often results in poor prognosis and a high mortality rate.
There are at least 64 million and 1 million new cases of TBI and traumatic SCI globally, respectively. According to the WHO, it has been estimated that TBI will surpass many diseases as the major cause of death and disability.
TBI and SCI increases with age, meaning that rates will continue to increase with the aging population.
E-NEURO Registry for Improving Neurotrauma Research and Care
By establishing a Pan-European registry, the EANS Foundation provides the tools and infrastructure needed to tackle the most pressing challenges in neurotrauma:
- Develop a Pan-European Prospective Neurotrauma registry to collect data for improving quality and safety, setting standards of care across Europe, and provide a platform to conduct multicentre research.
- Facilitate and co-ordinate the most important clinical trials for neurotrauma, helping to increase patient recruitment, increase funding, and tackle the biggest problems in the field.
- Incorporation of state-of-the-art technologies and integration of Artificial Intelligence (AI) to provide comprehensive data analysis, validation of data, and help with providing regular reports. This will reduce costs, ensure long-term feasibility, and provide comprehensive large data analysis.
- Facilitate multi-stakeholder partnerships across countries, with relevant sports organisations and non-profit organisations.
Our strategic focus remains on expanding our role in neuroscience, particularly in the field of traumatic brain injury (TBI).
